Aubrey Judith

Well we got “the talk” for the second time in one week but last night was because the attending pulled some of her meds and she freaked out. Aubrey is still not doing good and things can still go either way but she is fighting and isn’t giving up so yet again cross your fingers and pray. They have lowered some of her vent settings and she seems to be doing good so we are still hopeful that she will be on the regular vent soon. There is no real news on when she will be able to go to surgery and what is going to happen next but we are taking what we can get. We had Aubrey baptized last night because the doctor freaked us out… but we were going to do it anyway so it’s alright and we can do it again later. We really don’t like the attending that is on because he is a very negative person and doesn’t know how Aubrey works… she gets bad fast and takes a long time to get to a happy place again… she tends to go two steps forward and one back… we tell her to stop but she doesn’t listen. 

Well they don’t think that they can get her on the regular vent today because her lungs are “tight” because of her organs being overloaded with fluid so they are working on getting the fluid out right now. So no surgery today but they are trying to get her there. We hope it’s soon so that there isn’t any time for any other bad things to happen.

They are trying to get Aubrey on the regular vent tonight so that they can take her into surgery tomorrow. They want to do it as soon as they can so that she doesn’t have any more issues. They think that until the main issue (her gut) is fixed she will keep having problems. She gets blood products almost every 3-4 days it seems because they are used up because her body is trying to fix her gut… so again thoughts and prayers to get her through this is what we need and thank you to everyone for being there for us if we need you.

Well Aubrey isn’t out of the woods yet but she is doing better. The PICU doctor wants her to go to surgery ASAP because as long as her tummy isn’t right she won’t get better and she will keep having these problems. We are looking at surgery early in the week as long as she gets a little better. They are trying to take her off the oscillator (vent that puts puffs of oxygen in) and on the regular vent. They are also trying to get some of the fluid out of her because she is really bloated and off the blood pressure meds. Keep the prayers coming because it’s going to be another long week.

Today is a day for prayer.  Aubrey needs help today. Please no calls, just pray.

Well Aubrey went from not so good to worse today. We came in to the doctors saying a bunch of her levels were down and chances were they were not going to take her to surgery… then this afternoon it got worse. She is on a bunch of antibiotics, some anti fungal, and getting some blood. They said they were going to try to take her to surgery next week if she is doing better but she isn’t going to be better overnight so they want to wait till she can handle it… right now she could not. That is about it for her we just need her to get through this so we can take the next step to her getting out of the hospital.

Well Aubrey is doing fine now but she is still on the vent because they are going to take her in tomorrow for surgery. It may or may not have been a mucus plug it didn’t show on the x-ray but the lungs are moist which caused a section of the lung to stick together and they just needed to be “popped” apart and now they are getting some gunk out. They are trying to get rid of some of the extra fluids that they are giving her with her meds. Dr. C said it’s going to be a 4-6 hour surgery depending on what they see when they are in there. We know it’s going to be sometime in the afternoon when they take her in but it all depends on how behind they get with the other surgerys.

Well Aubrey had some issues today so there will be no surgery today it will be on Tuesday. She might have a mucus plug in her lung that isn’t letting her have as much oxygen that she should. She is doing alright but she is on the vent and she prob will be till she goes in on Tuesday.

Well Aubrey is going to surgery tomorrow… again. We really really really want this to be the last one. Cross your fingers and say a prayer that this will work and we will keep you all posted on how she is doing. We did have some play time with her black sheep today and she got a new blankie.

So I got to thinking about it and when Aubrey goes to surgery this will be the 8th time (I think it’s hard to keep count) that she has went to surgery… that’s alot. Anyway they are trying to get her to be part of a clinical trial for a drug that is legal in Europe and they are doing trials on in another state. It’s something made from fish oil that counter acts the issues that are caused by the TPN that she was on… which means it will help get rid of the liver damage… so we are game for that. Then if they do the surgery it sounds like they might remove the bad section and overlap the good ends to help it heal up and also put something around it to seal it up so we will see. They can’t do the surgery until they get the other things figured out but that sounds like the plan so far.